I met with my oncologist today (we're very fond of him). He pulled me off of the Oxaliplatin because it causes nerve damage after you've had enough of it. He feels that 11 courses of chemo (22 weeks) is plenty and I'll get no more of that one. That's a good thing because it's the one that makes me unable to eat, drink, or touch cold things. Since I love cold drinks on hot days and I'm a fan of ice cream, I'm happy to see that one go. Also, my fingers and toes have a little less feeling in them, which hopefully isn't permanent.
He has temporarily pulled me off of Erbitux because my face rash has become quite bad. What can I say, I'm ready for a break from that one too.
To replace the Oxaliplatin, he's started me on Irinotecan and has given me some Ambien to help with not sleeping well. I hear that Ambien can cause people to do things at night that they don't remember and daytime amnesia can happen if you get up after sleeping less than 8 hours. So, if I call any of you in the middle of the night or first thing in the morning and then don't remember doing so, please feel free to nicely hassle me about it. No fair making things up! ;)
Best wishes to all,
Tim
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4 comments:
Thanks for the update.
Hang in there, Tim. We keep you in our prayers morning and night.
Thanks for the warning about the Ambien. I think a few Washington politicians blamed it for their wild night partying!
I'll be turning the phones off at night from now on. :-)
All the best,
John and Jo Van't Land
You can call me at anytime of the day or night. I will try to record our conversation so I can hold you accountable for anything that you promise me.
I think that you called me and said that you would do the boat clean up this year.
Love, Dad
Well, Tim, so far so good? We haven't heard from you during the night so things must be going OK for you and the new drugs. (But come to think of it...you probably don't have our phone numbers. Whew!!!)
Seriously, though, we too continue to keep you in our thoughts and prayers and hope the next mix of medications are just as effective with a little less negative side effects, allowing you to do your part to keep the ice cream industry in business.
Marlene
Wait a minute--boat clean up!?!?! Oh, you must have mistaken me for Steve and Brian.
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